HEART TALKS
PATIENT STORIES
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HEART TALKS
PATIENT STORIES
SIGNS AND SYMPTOMS
“If you have had these other symptoms then you need to talk to your doctor about amyloidosis.”
-Walt, ATTR-CM Patient
In memory of Walt, a passionate advocate (1948-2022)
“I suspect that every journey is unique. I have been fortunate in that I got an early diagnosis.”
-Dempsey, ATTR-CM Patient
“I went to my primary care physician, and she couldn't figure out what was going on, and she sent me to a cardiologist.”
-Faye, hereditary ATTR-CM Patient
"Diagnosis took 11 years. If someone would have known to look, mine could have been diagnosed earlier."
-Walt, ATTR-CM Patient
In memory of Walt, a passionate advocate (1948-2022)
TALKING TO YOUR DOCTOR
“It's terribly important to work with somebody that understands cardiac amyloidosis.”
-Dempsey, ATTR-CM Patient
GENETIC TESTING
“Genetic testing is very important if you are diagnosed with ATTR-CM. You need to inform your family members if you have the hereditary form of the disease.”
-Randy, hereditary ATTR-CM Patient
CAREGIVER SUPPORT
“My husband Brad is my caregiver. I couldn't walk this journey without him.”
-Faye, hereditary ATTR-CM Patient
“It's hard watching Faye go through the struggles that she has. It's not gonna change...how I love her.”
-Brad, Caregiver
ATTR-CM EDUCATION
“There's such a high incidence of misdiagnosis...healthcare providers, family members, the public in general should be aware of this disease.”
-Randy, hereditary ATTR-CM Patient
“It is vital that information about ATTR-CM be shared within the African American community, especially.”
-Randy, hereditary ATTR-CM Patient
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